Archive for March, 2016


Sound Familiar? But of course, Borrelia! “The Blunder Games: Catching Fire“–how I am choosing to describe the politicizing of Lyme–has many parallels with the popular movie “Hunger Games: Catching Fire.”

Only the Hunger Games: Catching Fire is science fiction, while The Blunder Games: Catching Fire is clearly science friction.

In the Hunger Games: Catching Fire, the second movie in the films trilogy, the story of Katniss Everdeen, the victor of the twisted and tortured games sponsored by the controlling Capitol, continues. It seems as though her victory has caused an uprising against the Capitol itself by the commons folk whom Katniss represents. As a result of her victory, the commons folk  are inspired to rebel against their mistreatment. Obviously you see where I am going with this analogy. Yes. The IDSA in The Blunder Games is JUST like the Capitol–creating a  dystopian society of misery and disease with their politicized and misguided Lyme treatment guidelines. And whose members have vowed–in written documents–to mount a socio-political offensive against the Lyme community in the name of science. In the name of science? How’s this for science? A list of 700 articles citing chronic infection caused by tick-borne disease. It’s not difficult to see why the IDSA is inciting a gradual, yet promising, uprising by Lyme patients and doctors alike, against their mistreatment caused by the IDSA.

In The Hunger Games: Catching Fire, the movie’s setting is a jungle with a saltwater lake. In The Blunder Games: Catching Fire, the setting is….a “jungle” with salt in the wounds of thousands–millions–of Lyme sufferers.

In The Hunger Games: Catching Fire, the game arena is enclosed by an electromagnetic field. The layout of the game is arranged like a clock, and all of the arena’s challenges and obstacles faced by its participants, including Katniss, occur systematically on the hour. In The Blunder Games: Catching Fire, the clock is ticking. And the longer we allow politicized guidelines to “rule the game” (hmmmmm…let’s see 12 of 14 IDSA Lyme guidelines authors have conflicts of interest), the more patients will suffer, or die, hour after hour.

In The Hunger Games: Catching Fire, the contestants are faced with poisonous fog, torrential blood-soaked rains, and blood-thirsty baboons. In The Blunder Games: Catching Fire, the “contestants” (us) must counter the poisonous rhetoric of media and publications, including the “antiscience” of Lyme advocacy published in the Lancet and recently Lyme Bill: A prescription for trouble in the Boston Globe. They must also weather the blood-soaked rains (yes, blood of the lyme communty is on their hands) of medical professionals who dismiss and ridicule patients, including the experience of my dear friend and Huffington Post Lyme blogging phenom the Dana Parish who was dismissed and ignored by 11 Top NYC doctors.  “Contestants”  must also  deal with the, pardon my chuckles, “baboons” of the NIH and CDC who refer to us as Lyme loonies.

In The Hunger Games: Catching Fire, the story takes place on a scorched, post-apocalyptic nation known as Patem. In The Blunder Games: Catching Fire, as Dana Parish so pefectly put it in her most recent article Lyme: Fight Harder for Science and End this War, it’s time to recognize “the enormity of the scorched earth policies” of the IDSA, CDC and NIH.

In The Hunger Games: Catching Fire, Katniss eventually breaks free from the arena by taking aim with her arrow, harnessing a lightening bolt, and sending the arrow soaring through the electromagnetic field,  penetrating it and giving her an escape route out. In The Blunder Games: Catching Fire, many arrows are being fired at the electromagnetic fields of the IDSA, NIH, CDC, and those of the medical establishment. Arrows from such archery experts as Richard Horowitz whose tireless work has lead to breakthrough persister protocols. Arrows from Dr Ying Zhang at Johns Hopkins University and Kim Lewis from Northeastern University, taking aim at persisters as well, in addition  to Dr. Eva Sapi at the University of New Haven and her work on biofilms. Dana Parish, also an archery darling –for her bold and piercing truths published on the Huffington Post. Steven Phillips, past-president of ILADS, recently educated the media  on chronic Lyme with his matter of fact media style, scoring a bulls eye for the lyme community. The Global Lyme Alliance? Olympian archerists, for their world class education and research soaring to new heights. And lets not forget the fights from the individual states, passing Lyme legislation to protect patients and doctors.

What’s that I hear, Borrelia? It’s the sound of the electromagnetic field short-circuiting, one arrow at a time.

 

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Katniss, from “The Hunger Games’ Catching Fire”

 

 

 

The Whirlwind Whisperer

I uncharacteristically decided to sleep in this morning. Which meant waking up at 6:30 instead of 5 am. Intuitively, I must have felt that I’d need the extra rest before my day turned into a woefully yet wonderfully whirling wind of blustering activity. Leaving me breathless yet buoyant. Taxed yet terrific. Vibrating–will that left foot ever stop?–yet victorious.

 

After school drop off, it was a quick stop at the cafe for a medium dark roast and paleo banana bread (how does that work?). Then off to the grocery store before the chaos of Easter shoppers. My intermittent obsession with Pinterest had taken over me this weekend, leaving me with a list of things I didn’t usually buy and didn’t know where to find. Asian chicken wrap mix? Here? No here. Virgin sesame oil? Oil aisle or Asian aisle? Minced ginger. Produce or condiments? ooooh that was exhausting!  And I’d totally forgotten about my celery, carrots, cabbage and kale for this weeks juicing and the quinoa flakes, cocoa and coconut oil for the cookies. The only thing that made me sweat even more than running around was the bill!

 

I can carry $275 of groceries on both arms because I am so darn stubborn about not having to make multiple trips back to the car for bags. But surely I look ridiculous. Like a scarecrow on steroids. After unpacking I had to go back to the car after all for the Easter basket goodies I had hidden in the trunk earlier in the week. Back inside, I ripped open packages of gum and Pez, socks and lacrosse balls, t-shirts and tic tacs to divide between two Minion Easter baskets. I hid these and the pre-filled eggs (the only way to go) in my closet under my bathrobe and checked the task off of my mental list. My ever growing ever cluttered mental list.

 

While I’m here, futzing around in the closet, why not pack for the gala?? As in the Global Lyme Alliance Gala that I will be attending next week in Greenwich with the Dana Parish (have you checked Huffington Post lately? Check it!). Um…Green dress! No, black! No, purple! With boots! No, peep toes! And turquoise! No, diamonds! Can’t forget the snacks–I aways pack snacks–after all a large part of that $275 I just spent was on my stash of Mediterra bars, pistachios and dark chocolate!

 

Okay! Shoot! Never cancelled that conference call which is supposed to begin in 10 minutes! Looks like I’m jumping on. I will be clear and firm that I have no more than 20 minutes…as I still haven’t decided on a dress or stuffed my clothes in my suitcase…not that they need to know that. And on I went, with no indication that I had barely had time to switch from Mom mode to Prom mode to Work mode. You know what? Glad I made that call. Lots of ideas for customer conversion and retention…now, better pack my underwear and pajamas before I forget…

 

Underwear, check! Sneakers, check! Hey, wait a second. Before I pack these sneaks I should get my work out in. Yup! On with the tank and tight leggings, socks and sneaks. Hmmmmm…let me throw–literally throw–some veggies in the Vitamix and drink my greens on the way to the Y since I have no time to eat them, or anything else. I love my frothy celery and enjoy the quick solitude of juice and Juice Newton (Grease soundrack) in my car. Twenty vigorous minutes of intervals at incline 6 on the elliptical, 10 minutes on the stair climber, 1 mile around the track (enjoying an oddball desire to stream some Johnny Cash from Google Music) and 10 minutes lifting weights. Forty something minutes for this forty something girl was just fine for today! But not before having a fellow kettle beller snap a picture of me for my brand’s social media page. I have the ability to fit work in at ANY given moment!

 

And it was a race back home to post said social media pictures and greet my sixth grader from the bus, before going to pick up his sister from her school and taking them for spring clothes shopping–kill me now! Oh man, do we go with the medium or large? Blue, green or red? Or all three? Tanks or t-shirts? Fitted or loose? Adidas or Nike? Hawaiin or golf? After and hour or so it was time to pay up and pig out, this mama hadn’t eaten more than two nibbles all day and was ready to stoop to the healthiest fast food she could find. Enter the chicken pecan salad and chili. Aaaaaaahhh.

 

Full belly meant refueled, just in time to drive the kiddos–Southern New Hampshire Cavaliers at that–to back to back hockey practices.  After laughing and gabbing with some hockey moms (and dads), it was finally home for a SHOWER, a snack and a sudden need to blog about the day, out of need for creative expression and meaningful inspiration! For despite the vibrating left foot, fumbled words and the odd and at times debilitating new issue of  panic attacks at traffic lights, I still pushed myself through the whirlwind of my world. And will continue to do so as long as their is a breath of wind left in me.

 

 

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