It’s Day 2 of the ILADS 15th Annual Symposium in Washington, D.C. Here’s some sound bite highlights:

President Daniel Cameron

“Today, we open with our largest opening ever…500 attendees representing 42 states.”

Dr. Monzayeni, MD: Bartonella: Scientific and Clinical Considerations in Lyme Disease

“Suspect Bartonella especially when there are neurological or neuropsychiatric findings…especially when Lyme treatment fails.”

“It is possible to get Bartonella with out Borrelia. In fact, I think it is quite common. Bartonella can cause false positive on IgM Western blots.”

“Rodents. Birds. CATS. Dogs. Wildlife. Notice my emphasis on CATS?! Cats have 1,000,000 fold higher Bartonella levels in their blood than other animals. People can get Bartonella from cat (scratches) and flea exposure. That’s why they call it cat scratch fever.”

“Bartonella’s infection strategy is to get in the vascular system. It is a Small Vessel disease. Small Vessel disease causes working memory impairment and mood disruptions. Other signs include peripheral neuropathy (tingling), POTS, tremors, muscle/joint/pain, headache, fatigue.”

“With Bartonella, nerves are like the most sensitive trip wires.”

“When testing for Bartonella (Galaxy Labs), take a sample. Test the serum for presence of Bartonella DNA. Culture the blood. Test that. If negative, wait for awhile. Then repeat.”

“Bartonella is bizarre. It is an immune suppressant. Yet a B-cell stimulator.”

“In one case of a 30 year old veterinarian, a breast cyst tested positive for Bartonella. What is fibrocystic breast disease? Is there a connection? I don’t know. Liver cysts have also been seen.”

“You know you’ve arrived when you get a nasty letter from the editor from the CDC Lyme Team.”

“In my practice, 1/3 of my patients with Bartonella have Lyme, 1/2 have psychiatric issues and most have neurological issues.”

“There is no data on transmission of Bartonella during pregnancy. Over the last 4 years, I’ve seen five pregnancies, and the umbilical cord blood was negative for Bartonella in all 5. All the children are well. Nature may have developed a way of dealing with Bartonella.”

“My overall experience with Bartonella is generally positive, when using antibiotics.”

“Endocrine dysfunction is very common in Bartonella and this dysfunction interferes with treatment drugs. The adrenal and thyroid dysfunctions must be treated first or treatment will fail.”

“Typically with Bartonella, i.v. antibiotics is not needed. And there is a low rate of true relapse.”

Dr. Joseph Annibali: The Role of Spect in Diagnosing & Treating Lyme

“Modern psychology may reflect and lead to connections to infectious disease. Like Bartonella.”

“What is my connection to Lyme? My friend Gary, my daughter, her dog, our horse. And our cat at home, Valentino..My friend Gary was in a cardiac unit for 10 days after having palpitations. They wanted him to get a pacemaker. It ended up he had Lyme.”

“SPECT stands for Single Photon Emission Computed Tomography. It measures blood flow to the brain, not brain activity. It shows areas of the brain that work right and areas that don’t work right. It doesn’t give us specific answers. But it helps us ask better questions. There are other causes of low blood flow, or hypoperfusion, such as drug use or HIV.”

“In 75% of Lyme patients, we see hypoperfusion. Blood flow is reduced and the brain looks less healthy. It indicates low activity in certain areas. Abnormalities in an MRI are found in 14%. The SPECT is much better than an MRI.”

“There are two patterns in a SPECT. The first pattern is scalloping. These looks like bumps in the image of the brain. It has a toxic-looking bumpiness to it.”

“The second pattern of a SPECT is limbic overactivity, or inflammation.”

“How does a SPECT ultimately help? It emphasizes the need to decrease inflammation and/or calm the limbic system. It helps parents and families and even the affected to understand and accept why they are acting or feeling a certain way, including moodiness. It’s validation. It reduces guilt and shame. It can also help follow the progress of treatment.”

Stephen Phillips, MD: Brucellosis

“Brucellosis has been studied for over 100 years. We still have no agreed upon treatment.”

“When given, Vitamin C 1 gram per day for 15 days, 75% reversal of Brucella anergy was observed. Edible mushrooms are also helpful.”

“Liposomes are spherical vessels with lipids. Their structure mimics cell membranes. The immune system sees liposomes as invading cell and gobble them up. This makes liposomes an ideal drug/nutrient delivery system.”

“Liposomal gentamicin is 20,000 times more effective than free gentamicin.”

“If you miss a case of Brucellosis, it’s a tragedy. We don’t have the diagnostics, but we shouldn’t miss it by looking for increased CRP, fevers mostly in the evenings, hobbling and pain.”

Robert Bransfield, MD: Sleeping Disorders Impacting Lyme Patients

“Recovery is associated with sufficient REM sleep”

“Chronic stress and non restorative sleep from Chronic infections contributes to disease perpetuation which leads to compromised immunity.”

“With Chronic Lyme, you are half awake, half asleep all the time. You are never fully awake and never in a deep sleep.”

“Lack of sleep causes mitochondrial stress and shrinkage of the brain.”

“Delta sleep deficiency and sleep problems result in increased proinflammatory cytokines. Sleep deficiency blunts the immune response.”

“I’ve seen patients with horrific and intrusive images in the form of nightmares.”

Wayne Anderson, ND: Parasites

“Abdominal pain and constipation are two of the main signs or symptoms.”

“My Constipation Hypothesis: Chronic Lyme patients will have great difficulty or never get better when they are constipated. It blocks and locks the system. I’m highly sensitive to constipation in my patients.”

“Magnesium and vitamin C can be helpful.”

“When the constipation is recalcitrant, think parasites!!”

“Constipation happens because there is a lack of communication between the brain and gut. And inflammation of the lining of the gut.”

“The worse the abdominal pain, the most likely to be parasites. My suspicion index goes way up.”

“Antiparasite pharmaceuticals include Alinia, Albenozole, Ivermectin.”

“Antiparasitic herbs include Byron White A-P formula (15 drops 3x/day), gamma oryzanol, artemisia (helpful for babesia)”

Dr. Horowitz: Case studies

“For neuropathy, we used methyl B12, alpha lipoic acid and benfotiamine.”

“For OCD, inositol 2 grams several times per day.”

“For detox, oral liposomal glutathione which also helps with memory and fatigue.”

“Adrenal dysfunction is the largest nail that needed to be pulled. Find all the nails by using the 16 point MSIDS map. Once all of the things on the map are addressed, the patient will start to get better. It’s all in my book.”

“Thank you all for your compassion. It’s really people like you that are the future of medicine.”

“Joe Burrascano is one of the father’s of Lyme disease. He taught me what I know. Now I teach you what I know.”

Thank YOU all for YOUR compassion speakers and ILADS!!

500 docs from 42 states learning how to diagnose and treat Lyme!

500 docs from 42 states learning how to diagnose and treat Lyme!