Archive for September, 2012


Dear Borrelia

Dear Borrelia,

I’m sorry. What part of “My kids are off limits” did you not understand? Just now, after lying with my son in his bed, I thought if only I could rid him of you by osmosis. If only your spiral shaped serpent self would just leave him, and burden me. Of course I can take more of you if it would mean he take less. If only. And when I left his room, thinking of him alone in the dark, it tears me apart that you are in there. Doing your thing. You heartless grinch.

Not that he isn’t holding his ass-kicking own against you. What a tough kid, behind those big green eyes and long eye lashes. Not really making much of the pins and needles, headaches,  twitching, sleep disturbances and belly aches. Just keeping on keeping on. And playing ball and scoring hockey goals all the while. YEP. Indeed as the naturopath said today, he is fortunate to have my constitution. My DNA. My genes. The ones that say I somehow will find a can of whoop-bum despite it all. I will still smile and be me. I will be a champ and take medicines and supplements. I will eat healthy, exercise and honor my body. I will laugh and make others laugh. I will feel sick…and push through. Yes, all those genes. God give me strength to keep this attitude about myself, so I can help him do the same. Maybe this is why we met to begin with, Borrelia. Maybe God’s plan was for me to be his experienced teacher and tour guide through this all along.

Let’s think in 8 year old terms for a minute, Borrelia. There’s a game. Not one I’m proud to admit he has. Rated for 10 year olds, and yes he is 8. Not sure how he managed to sneak that download onto my ipad. But hey, seems like it is serving a purpose. Because today, Borrelia, I used it in a very important analogy for him. In the game, Blood and Glory (Legend), you must fight an evil foe. With a sword. But that is not all. You earn points, or money. With that money, you can buy potions. The potions give you an edge. You can mix and match your potions. You never know which potion will best help you defeat the ultimate enemy. You must keep trying….Enter today, Borrelia. We talked about antibiotics.  And how we need to combine different ones to act like a potion. And that we might need to try different potions. To get the ultimate enemy. You. He liked that analogy.

My diagram for him (with the help of his sisters drawing) of how “potions” of antibiotics, probiotics, homeopathics and healthy foods will help kill Borrelia.

And we talked about probiotics. And vegetables and fruit and eating healthy, which luckily he does anyway. And homeopathics. And how all this is part of the potion. He gets it, Borrelia. Unfortunately for him, he has to play this game. Unfortunately for you, game on. I pray to god for all the strength and courage we need and for it to persevere if times get tough.

He’s a clever kid, Borrelia. He loves Greek mythology. There are great stories and lessons and creatures and gods and heroes. Today, we read from his greek mythology book and from a little pocket of the inside cover, pulled out a Zeus tattoo that he put on his forearm. Zeus, the most powerful god, the god with a shield and thunderbolt, defeated the Titans. He is Zeus and you are the Titan in this analogy, Borrelia. Symbolic enough for me. And his sister? She chose Pegasus, the beautiful horse with silver wings. Because despite all the fighting and bickering, she hates to see her brother hurt or in trouble, and will fly by his side, I know she will.

So will I. With love, nurturing, understanding, positive attitude, encouragement, tenacity…and maybe at times, tears and frustration. But the end justifies the means. And soon, maybe you can be a myth for me and my family, a heroic story of our past. God willing.

Sincerely,

lyme whisperer

His favorite mythology book

Break My Stride

I like to preface a post by saying what my inspiration for the post was. I have no idea what inspired me to write my own lyrics for parts of Break My Stride by Matthew Wilder. Actually, I kid. I was very much inspired by the chorus. They are great fighting words. You’ll see the actual refrain below, however I’ve customized the other lyrics in dedication to you, Borrelia.

Little background…a follower of lyme whisperer recently posted that there is anecdotal evidence that scuba diving has the potential to rid one of lyme disease. It’s the nitrogen and the depth of the dive, usually 90′ for 30 minutes…Hence, additional inspiration for the opening lyrics below.

Also inspiration? I feel, as the lyrics say, you must never let anything break your stride. When you have lyme, you can’t stop. You can’t stop moving. Can’t stop believing. Can’t stop improving–your diet, your outlook, your support system, your treatment plan. Otherwise, Borrelia, you take over, you slow us down, and you win. No, we must hit the ground running, take those strides, and keep moving. Whatever we do, we must not stand still with this illenss. Problem is, Borrelia, you feel and act the same. You seem to never stop moving, never stop permeating, never stop adapting. It’s like a battle of the wills. Also reflected in the customized lyrics!

Ok, time for my dedication:

LW lyrics:

Last night I had the strangest dream,
I sailed away with doxycycline, and scuba dived for nitrogen
And you said you didn’t like the sea
Didn’t want no one to submerge you, what does that mean?

Matthew Wilder lyrics:

And I said
Ain’t nothing gonna break my stride
Nobody’s gonna slow me down
Oh no, I’ve got to keep on moving
Ain’t nothing gonna break my stride
I’m running and I won’t touch ground
Oh no, I’ve got to keep on moving

LW lyrics:

You’re on the loose inside me and you’re everywhere
This journey with you has sucked
My body is all amuck
You think you’re my proxy
What do you think of all the amoxicillin and doxycycline?

Matthew Wilder lyrics:

And she said
Ain’t nothing gonna break my stride
Nobody’s gonna slow me down
Oh no, I’ve got to keep on moving
Ain’t nothing gonna break my stride
I’m running and I won’t touch ground
Oh no, I’ve got to keep on moving

LW lyrics:
Never met another disease like you, you screwed me over
Never met another disease like you, I’ll take you under
If I meet another disease like you, I will tell it
Never want another disease like you, go away

Matthew Wilder lyrics:
Ain’t nothing gonna break my stride
Nobody’s gonna slow me down
Oh no, I’ve got to keep on moving
Ain’t nothing gonna break my stride
I’m running and I won’t touch ground
Oh no, I’ve got to keep on moving

Ain’t nothing gonna break my stride
Nobody’s gonna slow me down
Oh no, I’ve got to keep on moving
Ain’t nothing gonna break my stride
I’m running and I won’t touch ground
Oh no, I’ve got to keep on moving

Ain’t nothing gonna break my stride
Nobody’s gonna slow me down
Oh no, I’ve got to keep on moving
Ain’t nothing gonna break my stride
I’m running and I won’t touch ground
Oh no, I’ve got to keep on moving

And now, for fun, the video and actual lyrics. And Check out the outfits and dancing!! And REMEMBER! Don’t let Borrelia BREAK YOUR STRIDE!!

Actual Lyrics:

Last night I had the strangest dream,
I sailed away to China in a little rowboat to find you
And you said you had to get your laundry cleaned
Didn’t want no one to hold you, what does that mean?

And you said
Ain’t nothing gonna break my stride
Nobody’s gonna slow me down
Oh no, I’ve got to keep on moving
Ain’t nothing gonna break my stride
I’m running and I won’t touch ground
Oh no, I’ve got to keep on moving

You’re on the road and now you pray you’ll last
The road behind you was rocky
But now you’re feeling cocky
You look at me and you’ll see your past
Is that the reason you’re running so fast?

And she said
Ain’t nothing gonna break my stride
Nobody’s gonna slow me down
Oh no, I’ve got to keep on moving
Ain’t nothing gonna break my stride
I’m running and I won’t touch ground
Oh no, I’ve got to keep on moving

Never let another girl like you, whip me over
Never let another girl like you, drag me under
If I meet another girl like you, I will tell her
Never want another girl like you, have to say

Ain’t nothing gonna break my stride
Nobody’s gonna slow me down
Oh no, I’ve got to keep on moving
Ain’t nothing gonna break my stride
I’m running and I won’t touch ground
Oh no, I’ve got to keep on moving

Ain’t nothing gonna break my stride
Nobody’s gonna slow me down
Oh no, I’ve got to keep on moving
Ain’t nothing gonna break my stride
I’m running and I won’t touch ground
Oh no, I’ve got to keep on moving

Ain’t nothing gonna break my stride
Nobody’s gonna slow me down
Oh no, I’ve got to keep on moving
Ain’t nothing gonna break my stride
I’m running and I won’t touch ground
Oh no, I’ve got to keep on moving

I recently read an article at http://greatist.com called 27 Ways to Get More Sh!t Done. Which inspired me to come up with my own list..”27 Ways to Get Sh&t Done, Period…When You Have Lyme Disease”! Shall we begin, Borrelia? Here we go, in no particular order:

1. Lose 5 lbs. Ha. That’s easy. 6 antibiotic pills a day should do the trick.

2. Make dinner. Hmmm. I’m  good at short cuts. Let’s see, there is “Paris Night”–baguette, cheese, grapes. oooh lala mama! There’s nacho night. Tortialla chips. Shredded Cheese. Microwave, 30 seconds. Done. Way to go mamacita, right Borrelia? Breakfast night helps. Pancakes. With peanut butter, makes it a meal. Make your own salad night. Make your own sandwhich night. Make your own taco night. See a trend?

3. Clean house. Oh that’s easy too. Fabric bins. Like this one . All over the house. All you need to do is throw sh&t in them and your house looks clean. Bins for school bags and sweatshirts.  Bins for wii games and accessories. Bins for stuffed animals. Bins for legos. Bins for books and magazines! Bin there, done that!!

4. Entertain.  My friends call me The Ten o’clock Tyrant. Guess what? If you haven’t left by 10 p.m. I’m going to bed anyway. I don’t care. I’m TIRED with a capital T. Well least I tell them upfront, Borrelia. Love you, but you are outta here at 10. S-h-a-r-p. Leave the wine. xxoo Good thing they love me too.

5. School Field Trips. Fake it. Tell the teacher it’s the kid who has to pee AGAIN, not you. And good lord, whatever you do, don’t leave without the GPS.  Your brain fog may be worse after a day with 22 four-year olds.

6. Play Dates. Always and only at 10:00 am. Play for 2 hours.  Then lunch and nap with your toddler. That’s how I got through the toddler years, no other way!

7.  Work Trips. Tell no one your real flight arrangements or conference schedule. That way you can squeeze in a power nap at the hotel, at any given time. 3 hour exhibit hall stint that afternoon? Take a “conference call” back at the room….

8. Shopping. Choose one store. Fits? By 5 pairs. Different colors an option, not a must. You’re done. Works for shoes, jeans, suit jackets, trouser pants. I can spend $500 bucks easy in a 3×3 section of Express.  That’s what I call efficient. And energy sparing!

9. Finish a Book. Sorry. Can’t help you with that one. Too tired and too short of an attention span.

10. Finish a Movie. Oops. Sorry. Can’t help there either. Haven’t finished a movie in 3 years. Just can’t stay awake. No Avatar or Hunger Games for me.

11. Run a 5K. Shuffle a 5K. Or should the mood hit you, electric slide it.

12. Help Son with School Project. You know that birdhouse he built with his Dad at Home Depot, Borrelia? Let’s cut a hole in the roof. Paint it. And call it his Valentine’s card box, eh?

13. Xmas Shopping. One word:  Amazon. Two other words: Gift card. Three other words: No wrapping! Bags!

14. Plan Daughter’s Birthday. Oh, honey. That’s what Build-a-Bear is for.

15. Laundry. Separate? Sort? HA! That’s funny! No, I don’t think so….

16. Clean My Office: One file and one file only. File 13. Oh, looky. The desk is clean now. Mission Accomplished.

17. Dictate. Leave yourself voice memos on your iphone. About all the Sh&t you have to do. Or to buy grapes and cheese for Paris night (refer to #2)

18. Take Notes. On your forearm, preferably. That way it won’t rub off when you wash your hands. Forget the stickies. Because you will literally forget where you put the stickies.

19. Go iPhone Calendar Crazy. Use it until you are convinced it is going to combust with all the reminders and events you fill it up with. Birthday parties, meetings, girls nights, work trips, workouts, medicine times, Dr. Oz, Shark Week.  All of it.

20. Storytime. Nothing like having to read a pile of story books to two young kids at the end of a long day…unless you come up with family reading time. What a privelege to read on mommy and daddy’s bed to yourself  during this new, quiet time bedtime routine!

21. Host a Superbowl Party. Open red beans with can opener. Repeat with black and white beans, canned corn and tomatoes. Add pre-chopped convenience packed onions and celery. Sprinkle with chili powder. Then cumin. Turn on crockpot. Touchdown.

22. Walk. Like an Egyptian. Yeah, exercise hurts sometimes. But walk if you can, even with that pained, stiff, twisted, pinched back. Even if you look like an Egyptian. Cuz moving means strengthening and strengthening defeats you little by little, Borrelia.

23. Sit Through a School Talent Show. Bring your four year old. Leave during the 36th act (with 15 to go) because it is HER bedtime.

24. Go Grocery Shopping. Of all things, I think this one takes ALL my strength. I perimeter shop. Keeping it simple and as quick as I can. Daring to venture mid aisle only for the coffee. Of course.

25. Get Guiltless Downtime. PBS, Animal Planet, Discovery…yeah, educational stuff the kids can watch while Mom closes her eyes on the couch! Okay. I’m guilty of setting them in front of the occasional Star Wars marathon. Occasionally.

26. Quality Time With the Kids. Let the couch games begin! I spy? Mother May I? Simon Says? Charades? Taking “movies” with the iphone video cam? It can all be done while resting on the couch.

27. Stay Sane. This is a tough one. But find like minded people. Or should I say lyme minded people? Is that an oxymoron? Anyway, like Tired of Lyme. Like Lyme Friends Understand. Like The Tick That Bit Me. Like Lyme Disease Cure Please. Like Lyme Bytes. Like the 3B’s of Lyme. Like Lyme Chick. Like Team Lyme. And all the other great lyme bloggers and facebook page holders out there that have their own voice and story to share! For the good of all of us!

See Borrelia? We CAN manage. We can manage to get Sh&t done despite all your Sh&t. Here’s to all my lymies who get Sh&t done and for all of you right now that struggle to get Sh&t done. Keep up the fight! And for anyone who wishes to add #28, 29, 30 and so on…feel free to keep the conversation going right here! I know you have your own ways to get Sh&t done!