Archive for June, 2012

Me, My Kid, and a 5K

Wood Path

Wood Path (Photo credit: cdbdi media)

Well, well, well Borrelia!! I made a commitment a month ago. To get back to running. I had stopped, as you may recall, when I was at my sickest 3 yrs ago, as you started taking over. It was too painful to run, and I was too weak. Not that I’ve ever stopped moving because of you, not at all. I just modified my exercise routine to include mostly walking, power walking of course. And wii dance. And the elliptical. A month ago I decided I was feeling good and up for the challenge of getting back to running. And I have been and TODAY marks my first 5K for my son and I!

2nd Annual event for triple-negative breast cancer, in honor of Rosanne Sullivan

When I woke up this morning, in usual fashion, with you the doberman pincher grasping at my spinal cord in the small of my back like a rawhide bone, I said screw you. Mornings for me, like many lymie’s, are the worst. The pain settles overnite and in the morning it’s helloooooo Borrelia. And I was worried how my bladder would hold up, you know, the one you’ve transformed into a cheesecloth. Sometimes I wish I could weara  scarlett letter in this case “L”on my chest to signifiy lyme disease so I wouldn’t have to explain things away all the time. Like why I need to be close to a bathroom. Always.  Oh, well, they’ll be plenty of bushes and trees to hide behind on our 5K through the woods this morning. The excitement of sticking it to you by running a 5K brought me to my feet fast this morning. And the fact that my son wanted to run it with me made it that much more exciting for me. While getting myself back out there was part of my motivation for running the 5K, Borrelia, there was more to it than that.

Today, Borrelia, today we ran for Rosanne. Rosanne’s Rush for Research is a charitable 501(c)(3) non-profit organization formed in the name of Rosanne Sullivan, who passed away on October 22, 2010 from triple negative breast cancer. Triple Negative breast cancer, Borrelia. Even you are a walk in the park when it comes to what other people have to battle when it comes to illness. And I am not oblivious to that. So today my son and I wanted to support someone else and their fight. We wanted to raise money for Dana Farber cancer hospital on behalf of Rosanne so that research for triple negative breast cancer can advance. And maybe someday someone won’t lose their mom to it.

What a great day for a 5K, Borrelia! My son and I ran and walked our way through 3 hot miles through woodsy terrain, and his sister joined us for the victory lap around the highschool track where we ended. At one point he said wow, this is harder than I thought it would be. I said “Life is going to be harder than you think it will be too.  Just like Rosanne’s was harder than she thought it would be.” And what a great feeling when we crossed that finish line!! For ourselves and for Rosanne and all the women and families affected by breast cancer.

Copa Cabana

Manilow live in 2008 at the Xcel Energy Center

Manilow live in 2008 at the Xcel Energy Center (Photo credit: Wikipedia)

Borrelia! The names Barry and Bradshaw mean anything to you? Well last night to me, they meant lots of laughs, mostly at your expense! Sitting at the cabana poolside in Boston’s sweltering humid 100 degree heat, I enjoyed a nice evening socializing with my  co-workers at a company gathering.  And as we sat joking and laughing while sweat poured and pooled down our bodies (mostly about the sweat pouring and pooling down our bodies), I thought, wow, I’m “coping” in the the “cabana”. “Copa cobana”. Really, what better medicine or distraction is there than  letting things go for a bit and getting your mind off your worries? Especially while eating sliders and tuna tartar in the midst of great company? And that’s where Barry came in Borrelia. My thoughts went to Barry Manilow and Copacabana as I was coping in the cabana! And forgetting about you.

Then a colleague happened to say she was a fan of the lyme whisperer and some of my other coworkers joined in on the conversation, intrigued, supportive and happy to hear about it. And that’s where Bradshaw came in. Because after a cosmo or two on ice, I was professing to be the Carrie Bradshaw of lyme disease (think Sex and the City, Borrelia). Oh, Borrelia, all for laughs. It felt great to laugh and not be worrying about how tired I was from the day or how tired I would be the next morning after a social event. Thank goodness for my coworkers, for keeping Borrelia at bay last nite, at least mentally!

Battle Lines Drawn

That’s right Borrelia! I woke up today with a mission. Revise and renew my battle plan. After all that I’ve been reading lately, I’ve decided I’ve given my body enough of a “break” from antibiotics and herbal tinctures, and I need to get back on track with a formidable defense strategy. I CAN keep my defenses up against you and I must! But that’s just the beginning, B. I’ve also decided to arm my family with some natural tick repllent spray AND to protect all of us with organic lawn insecticide. Are you hearing me? I’m ready to fight on several fronts, here. Yeah…these are fightin’ words.  T-I-C-K TOCK, Borrelia. Tick. Tock.

Though I set out this morning hell bent on finding diatomaceous earth, or D.E. as its also known, I had no luck finding it at home depot, the only place I had time to search. D.E. is described as “naturally occurring, soft, sedimentary rock with a silica-like composition”. Would you like to know how it works, Borrelia? I’m going to tell you anyway. It basically causes ticks, which you use as your vehicle (more like war tank) for transmission,  to die a slow painful dehydrated death. God, I love the sound of that. I had seen this referred by another lymie blogger, lyme-disease-cure-please (thank you, fellow lymie!). Instead, however, as also mentioned by lyme-disease-cure-please, I did find a natural, organic EcoSmart product and am very excited about it, Borrelia. And I chose it over Ortho’s Bug B Gone. The EcoSmart Insect Killer Granules will be spread over my entire lawn, so it’s reassuring that it contains only eugenol, thyme oil, peanut shells and wintergreen oil. And get this–this one works as an octopamine blocker! Yeah, baby! That’s right. The essential oils in EcoSmart block the octopamine neurotransmitter in ticks. Octopamine regulates the heart rate, movements and metabolism of ticks. That means, according to the EcoSmart website, that blocking octopamine “results in a total breakdown of the insect’s central nervous system”…GEEZ, Borrelia, sounds EXACTLY like what you do to me! Anyhoo, loving my new purchase!

I also picked up some body spray insect repellant at the local natural pharmacy, again, more protection for the entire fam, Borrelia. I’m not crazy about smelling so strong and citronella-y, but I just prefer it to applying DEET all the time, especially when it comes to the kids. Like EcoSmart lawn insecticide, Burt’s Bees body spray herbal insect repellant also contains natural  essential oils, including rosemary oil, peppermint oil, cedar leaf oil, clove oil, and citronella.Lawn, check! Skin, check!

Now that I’ve addressed external defenses against ticks, Borrelia, let’s get to the internal defenses against you! Though I have tried and been pleased with Samento, as recommended by my naturopath, I think it’s time I try the Samento & Banderol double whammy. In a 2010 study conducted by the Lyme Disease Research Group of the University of New Haven, CT, Samento and Banderol were shown to be effective in providing immune support against you, Borrelia. In both your spirochete AND biofilm forms–that’s quite amazing. You can see an article regarding this study on the Townsend Letter website. Samento is a liquid cat’s claw herbal extract while Banderol is a liquid extract of the bark of the South American Otaba tree. Used together, they are more effective than either alone it seems. I already have the Samento, Borrelia, and just ordered the Banderol online today. Will chat with my naturopath first before taking the combo, but couldn’t wait to get it in my (our) hands! (Someday maybe they’ll be just MY hands again!). Oh, but there’s more, my “friend”! I am also taking out my Byron White A-L Complex again and Maitake Gold 404 liquid formulas, which I still have from my last naturopath visit! For the maximum immune boost. It’s boost or bust, baby!! Good night, Borrelia. Sleep tight. Though not sure you can sleep after our little chat this evening…

Mind Freak

“You’re the best mommy in the world…but you are very forgetful!”….is what my 5 year old daughter told me this morning, Borrelia. My lyme-mentia is apparent even, maybe especially, to her. Which got me to thinking…about all the ways you make me a mind freak, Borrelia:

  • Like how EVERY  morning, after standing in the shower for a few minutes, I realize I have no idea if I’ve already shampood my hair or not. EVERY morning.
  • Like when I was searching frantically for my cell phone while TALKING to my friend Katrina on it.
  • And how about boiling the lettuce instead of the pasta?
  • I should approach starbucks with my new idea, Borrelia. Lyme Latte. There has got to be other lymies out there trying to caffeinate themselves out of brain fog and confusion as much as I am.
  • How about those barbecue and peanut butter sandwiches? Instead of jelly….
  • The constant s-s-s-s-stuttering and stam stam stammering
  • And why can’t I ever spell Borelia the same way twice?
  • What about the popsicles I put in my son’s lunch box three days in a row. Until the teacher wrote a note home saying dear parent….popsicles melt when not placed in the freezer.
  • And my prescriptions! I’ve paid for some of them twice! Because somehow I lose them between the pharmancy, the car, and home?! And insurance doesn’t cover them the second time around! Surely the pharmacist thinks I’m up to something, like selling…
  • Everyday I am in password purgatory because of you Borrelia! I mean how the HELL am I supposed to remember all my fb, linked in, outlook, comcast, banking etc etc passwords!
  • The light switches in my house. Why do they suddenly confuse me so? Is this the backyard switch or the garage? Kitchen or front porch? Because of YOU and this damn lyme-mentia!
  • How about all the voice memos I need to leave myself every day on my iphone, Borrelia? Does that amuse you? I even need to leave voice memos to remind me to check my voice memos?…and sometimes by the time I press record I have no idea what I was even going to say.
  • Writing on my arm, that’s a good one. I gave up on stickies. Was writing things down only to lose the darn sticky. So that’s when I became known around the office for writing on my hands AND arms all the notes I needed to get me through the day…or next 5 minutes.
  • You’d think I could take my vitamins religiously. With all the bottles lined up on my desk staring me in the face. But no…of course not.
  • This might be my son’s favorite, Borrelia. I need to ask him every morning if I have matching earrings on. Because I embarrased him one day by wearing two different ones.

In fact, Borrelia, I’m looking forward to his summer vacation. School can be torture for working lymie mom’s–bring money, bring candy, sign this permission form, sign up for this field trip, get tickets for raffles, send in the book order, come to the book fair, bring cupcakes, bring hat for hat day, bring bike for bike day, pajama day on thursday, field day friday, bring in overdue library book, bring in box tops, family fun day next week, movie night next month etc. These details, these details, Borrelia I can’t take it. My brain can’t take it! I can’t take you!

This is day four of my blog, Borrelia. I thought it would feel therapeutic. But I have been reading more about lyme disease and treatments and prognosis and wonderful blogs from fellow lymies–more reading and researching in one week then I have in three years…and now its on my mind more than ever. And well, I have kind of felt like crap all week. Tired. Weepy. Out of it. Down. Maybe it was best when I just ignored you…I don’t know….

Under our Skin

We are coming for you, Borrelia Burgdorferi, aka the bacteria that causes lyme disease. Someday,  lyme doctors won’t be targeted or lose their  medical licenses for believing in and treating chronic lyme disease. Someday insurance companies and skeptic medical “professionals” won’t turn their backs on this epidemic. Someday. Awareness grows and we ARE coming for you and anyone else who gets in our way…

Alien vs. Predator

Watched Alien vs. Predator on the sci-fi chanel last night, Borrelia. You know I never watch the sci-fi channel. But as I was flipping through I realized that that disgusting black mucous covered alien with nasty teeth and claws is pretty how much I picture you. Utterly disgusting and carniverous. You’d have to be to gnaw through my nerves and tissues the way you have! But hey–did that stop me in anyway from catching my sons baseball playoffs today? Hell to the no, you alien.

This blog is about my conversations (whispers, swearing, chiding, nagging, etc) with “Borrelia”, the Borellia burgdorferi bacteria that causes my lyme disease. Please read the About, My Story and Lyme Info sections of my blog to get the idea. And welcome to the conversation!